It's been a very long time I know! I wonder if anyone will even notice we're back lol! Oh well, I keep up with this blog for my kids and I.
My last post was when Miss Vivian was born, and now she is over 3 months old. Time seriously flew by! I have been busy and just neglected this poor blog. We have been having fun too! I can't imagine our lives without Vivian! She is absolutely perfect in every way, maybe just a touch spoiled too. Words can't describe how we love this little girl! Her sister and brother adore her too! It will take me a few posts to describe Vivian and all our experiences, but all I will say for now is God is so good to us! I just sit and watch her along with Gracelyn and Max and I am so grateful! I don't regret at all having our 3 kiddos so close!
Max is doing great too! He is doing a bunch of new things and I believe I can say he is actually getting closer to walking! He just had surgery last week to close his hole where his G-button was and surgery went perfect! We had many many prayers going up for us, and that is why we always make it through! He is still the sweetest thing in the world, but his rotten side is showing more and more.
Gracelyn is going to be 4 very soon and I can't believe it! It breaks my heart that she is getting so big! She is the greastest. She is so nurturing and caring and smart! She definitely helps me out a ton!
I will keep this post short. I really want to start keeping up with this blog..I do I do! I keep trying to upload some pics but for whatever reason I can't, so when my hubby gets home, I will have him!
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Wednesday, August 8, 2012
Monday, April 23, 2012
Vivian Renea
Miss Vivian Renea made her grand entrance on Friday, April 20th at 1:19pm. Her crazy mother decided to go all natural again, and oh man is she regretting it! It wouldn't have been so bad if Vivian didn't weigh 9lbs 3oz, but thankful to her father she did. She was born very fast and when I said I had to push, I had to push! She came literally flying out and due to that fun ride, her face was very bruised at her clavicle is mildly fractured. She is excited to say she is the first Martin kid with a broken bone! She says beat that Max! She is beautiful and is an identical twin to her father and lots of dark brown hair, which makes her the first of the Martin kids to have any hair. She is very alert and spunky already, and this girl loves her boobie milk! She wanted to make sure her brother didn't go down as the only one who could cause problems, so she decided to compete. She has an infection in her blood, which is a common one and very easily treated with iv antibiotics, so guess what....yep, we are back in the nicu for 7 days. Oh man, my kids know how to be rotten! Everyone is so excited to see us again and just want to know when Max is coming up! I am not excited to be here lol! Vivian is showing no signs of infection, her blood work just came back positive. For all you weird medical people like me, it is gbs which is what they test you for when you are pregnant. I got tested and I was negative so we thought we were in the clear. They said either I had a false negative or somehow she just go it, who knows. Since we caught it so early, the doctors have no worries at all and tell us we have to just do routine antibiotics for seven days. How fun! Gracelyn and Max are not happy about this because they are anxiously waiting to torture their new sister. All in all, we are incredibly blessed and couldn't be happier to have Vivian. God didn't have to give us another child, but he did and we will be forever thankful! She already has our hearts in the palms of her hands, I am addicted to her and can't imagine our lives without her. She is perfect! I will post pics later on.
Wednesday, March 21, 2012
Happy World Down Syndrome Day!
Today is a day we not only celebrate Max but all the people with Down Syndrome!
Friday, March 9, 2012
How I love this little girl!
Fridays are now Gracelyn and I's day. I take her to school and then we do something special afterwards. She loves it and so do I. Sometimes, I feel like Max consumes all my time with his therapy and him just flat out needing me more. So I wanted one day where it was just us girls.
This girl is something else let me tell you! She may be 3 years old, but she is much wiser than that. She knows things that most 3 year olds shouldn't. She knows what it means to have a bubby that had a bad heart but God healed it. Every time she prays for her food, she asks God to continue to heal her bubby's heart. She knows how to clean a g-tube site and what cream goes on it. She knows how to comfort her bubby when he is screaming in pain from his monthly shots. She knows her bubby has a thing called Down syndrome and she could care less. She loves her brother unconditonally and wouldn't change him for the world. Why can't we all have this type of love for everyone? If children ruled the world, it would be much better.
I am so thankful God gave me my daugther. I know he made her for Max. She is his biggest supporter. Alot of people have said to me that Gracelyn will suffer some from having Max as a sibling, and I totally disagree! I think Max will make our kids more humble, more accepting of others that may be different, and have more compassion and love for others. Gracelyn and Max's relationship is no different than any other sister and brother. They fight like cats and dogs and then make-up.
There is something so special about having a daughter and I am so thankful for Gracelyn and I can't wait to meet my next daughter here very shortly! I am so blessed.
Friday, February 17, 2012
A few things on my mind...
I actually had a different post in mind until I read Patti's blog (Dearest Lilly). She said everything that has been in my heart for awhile. So please go read it. I still haven't figured out how to make it where you just click on the word and it takes you there, so here is the address for you to copy and paste...http://babynumber10.blogspot.com/2012/02/enough.html or just go over to her blog and read 'enough'.
Being the parent of a child that has different needs is like being on some wild ride. It has many highs and is fun, but then it has it's lows and scary moments. I have been struggling lately because I feel there are not many people that get us. It is hard for me to relate to people now because of what my life is like now. Most people won't even get what I just said. That is why it is so nice to read other mom's blogs that have children like I do. Because they get me. They know the struggles I go through and worries that I have. They get that every time someone says the word retarded around me, it tears my heart apart instantly. Other people see it as no big deal and I am just being too sensitive, but the ironic thing is the people that say this to me do not have children with Down sydrome or any different needs at all. Trust me when I say that I don't want it to hurt but it does. People say they understand but they really don't. As much as I love Max to death and would never change him, I do often wonder what would have been if he didn't have an extra chromosome. So again, thanks to Patti for writing an awesome post because sometimes it is hard to blog our true emotions out of fear how people will judge. Also thanks to my wonderful husband who gets me through so much. When I am having 'my moments', I go to him and he makes me feel better. Him and I are in this for life and I couldn't think of a better partner for me. I always tell him that he was made to be Max's dad because he is perfect at it. He doesn't care what people think or what they say like I do. He doesn't care how many hours of therapy we actually do with Max. God knew what he was doing when he gave Tyler to me.
Have I said lately that I hate flu season. My kids have had fevers going on eight days now. Before that Tyler was really sick and now I am. I finally took them to the doctor this week and they both have double ear infections on top the their virus. I am so sick of sickness. I am sick of watching Max and Ruby too! We have had to cancel therapy for two weeks now and we haven't left our house so we don't share our bugs. My kiddos are pooped out and so is their parents...
One thing Tyler and I have learned since having Max is that he is tough. This week has proved it to us. Gracelyn has been milking us for everything we got and whining like no other. Max is the same. He could get his foot sawed off and he would just look at you. He has been taking advantage of this situation and giving his sister a hard time, and I love every minute of it.
One more thing and then I am done...I am asking you all to say a prayer for our rotten Max. I haven't blogged about it because I am secretly waiting until we can do some hard-core celebrating, but Max got his g-button out almost a month ago. We are so proud of him and happy...but there is just one tiny little thing. Before the doctor pulled his button out, he warned us that a very slight and small percentage of kid's stomachs don't close on their own like they should. At this moment, Tyler and I laughed because we knew this would be Max. But, the doctor reassured us this was very rare. So after calling Riley's hospital because Max's button site was still leaking nasty stomach goo, they said give it 30 days to stop leaking. At the end of the 30 days if it was still leaking, they said to go ahead and schedule surgery so he could get it surgically closed. Well his 30 days are up next week and it is still leaking nasty stomach goo, not as bad as before but still leaking. So please pray that his little rotten stomach will close on it's own and we do not have to have another surgery, but if we do that all goes well. Thank you!
Being the parent of a child that has different needs is like being on some wild ride. It has many highs and is fun, but then it has it's lows and scary moments. I have been struggling lately because I feel there are not many people that get us. It is hard for me to relate to people now because of what my life is like now. Most people won't even get what I just said. That is why it is so nice to read other mom's blogs that have children like I do. Because they get me. They know the struggles I go through and worries that I have. They get that every time someone says the word retarded around me, it tears my heart apart instantly. Other people see it as no big deal and I am just being too sensitive, but the ironic thing is the people that say this to me do not have children with Down sydrome or any different needs at all. Trust me when I say that I don't want it to hurt but it does. People say they understand but they really don't. As much as I love Max to death and would never change him, I do often wonder what would have been if he didn't have an extra chromosome. So again, thanks to Patti for writing an awesome post because sometimes it is hard to blog our true emotions out of fear how people will judge. Also thanks to my wonderful husband who gets me through so much. When I am having 'my moments', I go to him and he makes me feel better. Him and I are in this for life and I couldn't think of a better partner for me. I always tell him that he was made to be Max's dad because he is perfect at it. He doesn't care what people think or what they say like I do. He doesn't care how many hours of therapy we actually do with Max. God knew what he was doing when he gave Tyler to me.
Have I said lately that I hate flu season. My kids have had fevers going on eight days now. Before that Tyler was really sick and now I am. I finally took them to the doctor this week and they both have double ear infections on top the their virus. I am so sick of sickness. I am sick of watching Max and Ruby too! We have had to cancel therapy for two weeks now and we haven't left our house so we don't share our bugs. My kiddos are pooped out and so is their parents...
One thing Tyler and I have learned since having Max is that he is tough. This week has proved it to us. Gracelyn has been milking us for everything we got and whining like no other. Max is the same. He could get his foot sawed off and he would just look at you. He has been taking advantage of this situation and giving his sister a hard time, and I love every minute of it.
One more thing and then I am done...I am asking you all to say a prayer for our rotten Max. I haven't blogged about it because I am secretly waiting until we can do some hard-core celebrating, but Max got his g-button out almost a month ago. We are so proud of him and happy...but there is just one tiny little thing. Before the doctor pulled his button out, he warned us that a very slight and small percentage of kid's stomachs don't close on their own like they should. At this moment, Tyler and I laughed because we knew this would be Max. But, the doctor reassured us this was very rare. So after calling Riley's hospital because Max's button site was still leaking nasty stomach goo, they said give it 30 days to stop leaking. At the end of the 30 days if it was still leaking, they said to go ahead and schedule surgery so he could get it surgically closed. Well his 30 days are up next week and it is still leaking nasty stomach goo, not as bad as before but still leaking. So please pray that his little rotten stomach will close on it's own and we do not have to have another surgery, but if we do that all goes well. Thank you!
Wednesday, January 18, 2012
Reflecting...
This week it seems like I have heard of so many babies being born with Down Syndrome. It has caused me to go back to the 'earlier days' and reflect on everything. Every time I hear of baby with Down Syndrome being born, I instantly get excited. Then at the same time, I get sad for the parents. I know the feelings they are probably experiencing at first and the all the fear they see. I haven't been our this journey long so I know I am not even close to being an expert. But I do know it gets so much better. I think everyone that has a baby born with Down Syndrome goes through their own emotions and we all handle it differently. There is no right way to deal with it. For me personally, I really struggled with Down Syndrome for awhile. Anyone that read my blog in the beginning would agree. I never beat myself up over that though. I let myself go through all the emotions even if no one else understood where I was coming from. Some people would like to give us their own advice on how they would do things, but the only problem with that is they had no idea what we were going through. If you don't walk in the same shoes as someone, you really have no idea. I really try to remember this before I open my mouth up now to give any advice.
I just wish I could tell all the new parents out there to just hang on and trust in God. There are moments that are so rough that you think you will never get through, but you do. I remember thinking that my 'storm' was never going to settle down. I couldn't see the light at the end of the tunnel. It was one thing after another the first year of Max's life. Between his heart and feeding issues, I was a crazy woman. I am still trying to recover...lol. There was a song that I always thought of when we were struggling with things. It's "Ride out Your Storm". I love that song so much. Every single word of it is so true. My favorite part was "you're hurting now, but your morning is coming". Everything comes to pass. I knew if I held on, my morning would come. And it did and I am loving every minute of it. I would go through everything we did ten times if it meant I got Max. He was worth it all and still is.
If I had it to do over, the moment Max came out and I knew he had Down Syndrome, I would laugh and say 'here we go buddy'. I wouldn't cry sad tears, I would cry happy ones. I would never have let the nurses take him from me, I would have snuggled up with him every single minute. I also wouldn't have let people hurt me like they did. I wouldn't have cared what people said about Down Syndrome because none of it matters. We know we hit the 1 in 1300 jackpot and we know God doesn't ever make mistakes.
I just wish I could tell all the new parents out there to just hang on and trust in God. There are moments that are so rough that you think you will never get through, but you do. I remember thinking that my 'storm' was never going to settle down. I couldn't see the light at the end of the tunnel. It was one thing after another the first year of Max's life. Between his heart and feeding issues, I was a crazy woman. I am still trying to recover...lol. There was a song that I always thought of when we were struggling with things. It's "Ride out Your Storm". I love that song so much. Every single word of it is so true. My favorite part was "you're hurting now, but your morning is coming". Everything comes to pass. I knew if I held on, my morning would come. And it did and I am loving every minute of it. I would go through everything we did ten times if it meant I got Max. He was worth it all and still is.
If I had it to do over, the moment Max came out and I knew he had Down Syndrome, I would laugh and say 'here we go buddy'. I wouldn't cry sad tears, I would cry happy ones. I would never have let the nurses take him from me, I would have snuggled up with him every single minute. I also wouldn't have let people hurt me like they did. I wouldn't have cared what people said about Down Syndrome because none of it matters. We know we hit the 1 in 1300 jackpot and we know God doesn't ever make mistakes.
Saturday, January 14, 2012
We are back
We have been a little busy since our last post. We moved right before all the holidays hit and we have been trying to get settled in since then. Here are some pics...
On New Years day, Max decided he wanted to do something cool and fall down our basement stairs and then land on the concrete. Mom and dad almost had a heart attack. We took him to the ER just to make sure that head of his was fine. Here he is in the ER..loving every minute of it!
Here is Max and daddy enjoying some very nice weather in January.
Here is my little diva herself...she is pure rotten but I love here to death!
She loves to feed her bubby and does quite well too...
Finally, Mr. Max was way overdue for a hair cut so we finally did. He beat his sister to it...the poor girl hasn't needed a hair cut yet. Max did so well and looks so stinking handsome. Here is the before, during, and after. The after isn't that greatest but he was so sick of pictures by then.
You might be wondering why this kid never has his glasses on...well I am too. This boy fights me every single time I put those things on. I am going crazy over his glasses. Maybe after a year or two..he will keep them on!
On New Years day, Max decided he wanted to do something cool and fall down our basement stairs and then land on the concrete. Mom and dad almost had a heart attack. We took him to the ER just to make sure that head of his was fine. Here he is in the ER..loving every minute of it!
Here is Max and daddy enjoying some very nice weather in January.
Here is my little diva herself...she is pure rotten but I love here to death!
She loves to feed her bubby and does quite well too...
Finally, Mr. Max was way overdue for a hair cut so we finally did. He beat his sister to it...the poor girl hasn't needed a hair cut yet. Max did so well and looks so stinking handsome. Here is the before, during, and after. The after isn't that greatest but he was so sick of pictures by then.
You might be wondering why this kid never has his glasses on...well I am too. This boy fights me every single time I put those things on. I am going crazy over his glasses. Maybe after a year or two..he will keep them on!
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